Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons

SND-ID: 2020-180

Description Data and documentation

Creator/Principal investigator(s)

Albert Westergren - Kristianstad University, Faculty of health sciences orcid

Description

An instrument, Next of Kin Participation in Care (NoK-PiC) with two subscales: Communication and Trust (CaT); and Collaboration in Care (CiC), are compared within groups (control and intervention groups) before and after an educational intervention. Comparisons can be done using raw scores as well as linearized scores. Individual person level significance is given.

The project implemented an educational intervention across 30 nursing homes. The intervention consisted of five 2-hour seminars addressing the knowledge and skills considered necessary to provide evidence-based palliative care in nursing homes. The content was based on fundamental principles of palliative care. The topics covered by each seminar were: 1) the palliative approach and dignified care; 2) NoK; 3) existence and dying; 4) symptom relief and 5) collaborative care.

Language

English

Research principal, contributors, and funding
Protection and ethical review

Data contains personal data

No

Ethics Review

Lund - Ref. 2015/69

Method

Unit of analysis

Population

Next of kin of older people in nursing homes.

Study design

Observational study

Description of study design

A pre-post non-randomised control and intervention group evaluation

Sampling procedure

Other
Consecutive
Geographic coverage

Geographic spread

Geographic location: Scania

Publications

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Ahlstrom, G., Nilsen, P., Benzein, E., Behm, L., Wallerstedt, B., Persson, M., & Sandgren, A. (2018). Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliative Care, 17, Article 52. https://doi.org/10.1186/s12904-018-0308-2
URN: urn:nbn:se:liu:diva-147414
DOI: https://doi.org/10.1186/s12904-018-0308-2

Westergren, A., Behm, L., Lindhardt, T., Persson, M., & Ahlström, G. (2020). Measuring next of kin’s experience of participation in the care of older people in nursing homes. PLoS ONE, 15(1). https://doi.org/10.1371/journal.pone.0228379
URN: urn:nbn:se:hkr:diva-20345
DOI: https://doi.org/10.1371/journal.pone.0228379

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Dataset
Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons

Description

SPSS data file with age, gender, control/intervention group, raw scores for the total scale (NoK-PiC) and for subscales (CaT and CiC) before and after an educational intervention. Linearized scores with standard errors, and individual person-level significance is also given.

Empty cells means that the questions are not answered

Version 1

Citation

Albert Westergren. Kristianstad University, Faculty of health sciences (2020). <em>Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons</em>. Swedish National Data Service. Version 1. <a href="https://doi.org/10.5878/bknc-4277">https://doi.org/10.5878/bknc-4277</a>

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Data format / data structure

Numeric

Creator/Principal investigator(s)

Albert Westergren - Kristianstad University, Faculty of health sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Source of the data: Research data

Variables

40

Number of individuals/objects

203

Published: 2020-12-16