Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons

Creator/Principal investigator(s)

Albert Westergren - Kristianstad University, Faculty of health sciences orcid

Description

An instrument, Next of Kin Participation in Care (NoK-PiC) with two subscales: Communication and Trust (CaT); and Collaboration in Care (CiC), are compared within groups (control and intervention groups) before and after an educational intervention. Comparisons can be done using raw scores as well as linearized scores. Individual person level significance is given.

The project implemented an educational intervention across 30 nursing homes. The intervention consisted of five 2-hour seminars addressing the knowledge and skills considered necessary to provide evidence-based palliative care in nursing homes. The content was based on fundamental principles of palliative care. The topics covered by each seminar were: 1) the palliative approach and dignified care; 2) NoK; 3) existence and dying; 4) symptom relief and 5) collaborative care.

Subject area

Probability Theory and Statistics, Medical and Health Sciences (The Swedish standard of fields of research 2011)

Keywords

quantitative data, individual person-level comparison, metrologi, next of kin, nursing home, between groups comparisons, psychometric, elderly care, within groups comparisons

Principal organisation

Kristianstad University

Accessibility status

Access to data through SND
Data are freely accessible

Download data

Next of Kin Participation in Care.sav (42.46 KB)
Questionnaire Next of Kin Participation in Care.pdf (435.47 KB)
Analyses.pdf (611.31 KB)

Responsible department/unit

Kristianstad University, Faculty of health sciences

Creator/Principal investigator(s)

Albert Westergren - Kristianstad University, Faculty of health sciences orcid

Identifiers

SND-ID: 2020-180

Description

An instrument, Next of Kin Participation in Care (NoK-PiC) with two subscales: Communication and Trust (CaT); and Collaboration in Care (CiC), are compared within groups (control and intervention groups) before and after an educational intervention. Comparisons can be done using raw scores as well as linearized scores. Individual person level significance is given.

The project implemented an educational intervention across 30 nursing homes. The intervention consisted of five 2-hour seminars addressing the knowledge and skills considered necessary to provide evidence-based palliative care in nursing homes. The content was based on fundamental principles of palliative care. The topics covered by each seminar were: 1) the palliative approach and dignified care; 2) NoK; 3) existence and dying; 4) symptom relief and 5) collaborative care.

Language

English

Geographic spread

Geographic location: Scania

Unit of analysis

Population

Next of kin of older people in nursing homes.

Study design

Observational study

Description of study design

A pre-post non-randomised control and intervention group evaluation

Sampling procedure

Other

Ethics Review

Lund — Ref. 2015/69

Subject area

Probability Theory and Statistics, Medical and Health Sciences (The Swedish standard of fields of research 2011)

Keywords

quantitative data, individual person-level comparison, metrologi, next of kin, nursing home, between groups comparisons, psychometric, elderly care, within groups comparisons

Related research data in SND's catalogue

Measuring next of kin´s experience of participation in the care of older people in nursing homes

Associated documentation

Questionnaire Next of Kin Participation in Care.pdf

Analyses.pdf

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Publications

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Ahlstrom, G., Nilsen, P., Benzein, E., Behm, L., Wallerstedt, B., Persson, M., & Sandgren, A. (2018). Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliative Care, 17, Article 52. https://doi.org/10.1186/s12904-018-0308-2
URN: urn:nbn:se:liu:diva-147414
DOI: https://doi.org/10.1186/s12904-018-0308-2

Westergren, A., Behm, L., Lindhardt, T., Persson, M., & Ahlström, G. (2020). Measuring next of kin’s experience of participation in the care of older people in nursing homes. PLoS ONE, 15(1). https://doi.org/10.1371/journal.pone.0228379
URN: urn:nbn:se:hkr:diva-20345
DOI: https://doi.org/10.1371/journal.pone.0228379

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Version 1

2020-12-16
https://doi.org/10.5878/bknc-4277

Download data

Next of Kin Participation in Care.sav (42.46 KB)
Questionnaire Next of Kin Participation in Care.pdf (435.47 KB)
Analyses.pdf (611.31 KB)

Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons

Suggested citation

Albert Westergren. Kristianstad University, Faculty of health sciences (2020). <em>Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons</em>. Swedish National Data Service. Version 1. <a href="https://doi.org/10.5878/bknc-4277">https://doi.org/10.5878/bknc-4277</a>

Creator/Principal investigator(s)

Albert Westergren - Kristianstad University, Faculty of health sciences orcid

Description

SPSS data file with age, gender, control/intervention group, raw scores for the total scale (NoK-PiC) and for subscales (CaT and CiC) before and after an educational intervention. Linearized scores with standard errors, and individual person-level significance is also given.

Empty cells means that the questions are not answered

Keywords

quantitative data, between groups comparisons, within groups comparisons, individual person-level comparison

Data format / data structure

Numeric

Data collection

Mode of collection: Self-administered questionnaire

Time period(s) for data collection:

Source of the data: Research data

Variables

40

Number of individuals/objects

203

Published: 2020-12-16