Alternative title
Functional development of Ugandan children/youth with CP
Creator/Principal investigator(s)
Angelina Kakooza-Mwesige
- Makerere University Kampala Uganda , Pediatrics and Child Health
Carin Andrews
- Karolinska Instituet, Womens and Children's Health
Hans Forssberg
- Karolinska Instituet, Womens and Children's Health
Description
AIM
To follow the functional development of a population-based cohort of children and youth (C&Y) with cerebral palsy (CP) in rural Uganda and compare their development with developmental trajectories from high-income countries (HIC).
METHODS
Eighty-one C&Y aged 2–17 years with CP were assessed 2015 and 2019 using Gross Motor Function Measure-66 items (GMFM-66), Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), and functional classification systems. We calculated scaled scores (actual scores) and reference scores (amount of deviation from HIC developmental trajectories). Wilcoxon signed rank test was used for statistical analyses.
RESULTS
C&Y with CP in Uganda exhibited no differences in scaled scores between the first and second assessments for GMFM-66 and PEDI-UG mobility skills, while they exhibited increased PEDI-UG self-care skills (p
Language
English
Research principal
Responsible department/unit
Karolinska Institutet, Womens and Children's HealthContributor(s)
Makerere University, Pediatrics and Child Health
Funding
-
Funding agency:
Swedish Ressearch council
Data contains personal data
Yes
Sensitive personal data
Yes
Ethics Review
Other - Ref. HS1787 & HS2608
Unit of analysis
Population
A population-based cohort of children with Cerebral Palsy in a geographically defined area in Eastern Uganda
Study design
Observational study
Sampling procedure
Time period(s) investigated
2015-04–2019-12
Geographic spread
Geographic location: Uganda, Sub-Saharan Africa
Geographic description: Iganga/Mayuge Health and Demographic Surveillance Site, Uganda
Kakooza-Mwesige A, Andrews C, Peterson S, Wabwire Mangen F, Eliasson AC, Forssberg H. Prevalence of cerebral palsy in Uganda: a population-based study. Lancet Glob Health. 2017 Dec;5(12):e1275-e1282. doi: 10.1016/S2214-109X(17)30374-1.
DOI:
https://doi.org/10.1016/S2214-109X(17)30374-1
Andrews, C., Namaganda, L., Eliasson, A.-C., Kakooza-Mwesige, A. and Forssberg, H. (2021), Functional development in children with cerebral palsy in Uganda: population-based longitudinal cohort study. Dev Med Child Neurol. https://doi.org/10.1111/dmcn.14996.
DOI:
https://doi.org/10.1111/dmcn.14996
If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.
Description
The dataset contains of the following files:- Functional_development_in Uganda_dataset_Andrews_et_al.csv
- Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf
Information about the tool Gross Motor Function Measure-66 (GMFM-66):
https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfm
Version 1
https://doi.org/10.5878/txww-hg72
Citation
Download citation
Data format / data structure
Numeric
Text
Creator/Principal investigator(s)
Angelina Kakooza-Mwesige
- Makerere University Kampala Uganda , Pediatrics and Child Health
Variables
35
Number of individuals/objects
81