Functional development in children and youth with cerebral palsy in Uganda

SND-ID: 2021-68

Description Data and documentation

Alternative title

Functional development of Ugandan children/youth with CP

Creator/Principal investigator(s)

Angelina Kakooza-Mwesige - Makerere University Kampala Uganda , Pediatrics and Child Health orcid

Carin Andrews - Karolinska Instituet, Womens and Children's Health orcid

Hans Forssberg - Karolinska Instituet, Womens and Children's Health orcid

Description

AIM
To follow the functional development of a population-based cohort of children and youth (C&Y) with cerebral palsy (CP) in rural Uganda and compare their development with developmental trajectories from high-income countries (HIC).

METHODS
Eighty-one C&Y aged 2–17 years with CP were assessed 2015 and 2019 using Gross Motor Function Measure-66 items (GMFM-66), Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), and functional classification systems. We calculated scaled scores (actual scores) and reference scores (amount of deviation from HIC developmental trajectories). Wilcoxon signed rank test was used for statistical analyses.

RESULTS
C&Y with CP in Uganda exhibited no differences in scaled scores between the first and second assessments for GMFM-66 and PEDI-UG mobility skills, while they exhibited increased PEDI-UG self-care skills (p

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Language

English

Research principal, contributors, and funding

Research principal

Karolinska Institutet

Contributor(s)

Makerere University, Pediatrics and Child Health

Funding

  • Funding agency: Swedish Ressearch council rorId
Protection and ethical review

Data contains personal data

Yes

Sensitive personal data

Yes

Ethics Review

Other - Ref. HS1787 & HS2608

Method

Population

A population-based cohort of children with Cerebral Palsy in a geographically defined area in Eastern Uganda

Study design

Observational study

Sampling procedure

Total universe/Complete enumeration

Time period(s) investigated

2015-04–2019-12

Geographic coverage

Geographic spread

Geographic location: Uganda, Sub-Saharan Africa

Geographic description: Iganga/Mayuge Health and Demographic Surveillance Site, Uganda

Publications

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Kakooza-Mwesige A, Andrews C, Peterson S, Wabwire Mangen F, Eliasson AC, Forssberg H. Prevalence of cerebral palsy in Uganda: a population-based study. Lancet Glob Health. 2017 Dec;5(12):e1275-e1282. doi: 10.1016/S2214-109X(17)30374-1.
DOI: https://doi.org/10.1016/S2214-109X(17)30374-1

Andrews, C., Namaganda, L., Eliasson, A.-C., Kakooza-Mwesige, A. and Forssberg, H. (2021), Functional development in children with cerebral palsy in Uganda: population-based longitudinal cohort study. Dev Med Child Neurol. https://doi.org/10.1111/dmcn.14996.
DOI: https://doi.org/10.1111/dmcn.14996

If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

Dataset
Functional development in children and youth with cerebral palsy in Uganda

Description

The dataset contains of the following files:
- Functional_development_in Uganda_dataset_Andrews_et_al.csv
- Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf

Information about the tool Gross Motor Function Measure-66 (GMFM-66):
https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfm

Version 1

Citation

Angelina Kakooza-Mwesige. Karolinska Institutet, Womens and Children's Health (2021). <em>Functional development in children and youth with cerebral palsy in Uganda</em>. Swedish National Data Service. Version 1. <a href="https://doi.org/10.5878/txww-hg72">https://doi.org/10.5878/txww-hg72</a>

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Data format / data structure

Numeric

Text

Creator/Principal investigator(s)

Angelina Kakooza-Mwesige - Makerere University Kampala Uganda , Pediatrics and Child Health orcid

Data collection

  • Mode of collection: Measurements and tests
  • Time period(s) for data collection: 2015-04–2019-12
  • Source of the data: Research data, Population group

Variables

35

Number of individuals/objects

81

Published: 2021-08-19