SpAScania

This study is part of the collection Scania Metadatabase for Epidemiology (SME)

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Description:

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Responsible department/unit:

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Identifiers:

SND-ID: EXT 0091

Purpose:

The aim is to create a longitudinal cohort of patients with spondyloarthritis and study the consequences of the disease on individuals and society.

Description:

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Time period(s) investigated:

2009-05 — 2012-01

Unit of analysis:

Population:

Scanians older than 18 years who sought treatment between 2003 and 2007 and received a spondyloarthritis-related diagnostics at least once by a specialist in rheumatology or internal medicine alternatively at least twice by a physician with other skills.

Sampling procedure:

Non-probability: Purposive

Ethics Review:

Lund —2008/406

Is part of collection at SND:

Scania Metadatabase for Epidemiology (SME)

Publications

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Haglund E. Prevalence, physical activity, and work in patients with spondyloarthritis, Doctoral dissertation, Faculty of Medicine, Lund University, No 2013:107
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Haglund E, Bremander AB, Petersson IF, Strömbeck B, Bergman S, Jacobsson LT, Turkiewicz A, Geborek P, Englund M. Prevalence of spondyloarthritis and its subtypes in southern Sweden. Ann Rheum Dis. 2011 Jun;70(6):943-8
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Haglund E, Bremander A, Bergman S, Jacobsson LT, Petersson IF. Work productivity in a population-based cohort of patients with spondyloarthritis. Rheumatology (Oxford). 2013 Sep;52(9):1708-14.
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If you have published anything based on these data, please notify us with a reference to your publication(s).

Dataset EXT 0091-001

SpAScania 2009

Data format / data structure:

Numeric

Data collection:

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2009-05 — 2009-08

Source of the data: Population group

Time period(s) investigated:

2009-05 — 2009-08

Number of individuals/objects:

2785

Response rate/participation rate:

48%

Dataset EXT 0091-002

SpAScania 2011

Data format / data structure:

Numeric

Data collection:

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2011-11 — 2012-01

Source of the data: Population group

Time period(s) investigated:

2011-11 — 2012-01

Number of individuals/objects:

2037

Response rate/participation rate:

58%