SpAScania

This study is part of the collection Scania Metadatabase for Epidemiology (SME)

Creator/Principal investigator(s)

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Description

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Purpose:

The aim is to create a longitudinal cohort of patients with spondyloarthritis and study the consequences of the disease on individuals and society.

Subject area

HEALTH (CESSDA Topic Classification)
Medical and Health Sciences, Clinical Medicine, Rheumatology and Autoimmunity (The Swedish standard of fields of research 2011)

Keywords

quality of life, smoking, physical activities, pain, sick leave, education, mental health, medical history, demography, diagnosis, epidemiologic studies, cohort studies, life style, longitudinal studies, anxiety, depression, fatigue, patients, working conditions, leisure time activities, productivity, rheumatic diseases, spondylarthritis, arthritis, psoriatic, epihealth, body function, self-efficacy, scania, ankylosing spondylitis, disease activity, work ability, undifferentiated spondylarthritis, epihealth_skåne, inflammatory arthritis associated with inflammatory bowel disease

Principal organisation

Information not available, contact SND for more information

Responsible department/unit

Creator/Principal investigator(s)

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Identifiers

SND-ID: EXT 0091

Description

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Purpose:

The aim is to create a longitudinal cohort of patients with spondyloarthritis and study the consequences of the disease on individuals and society.

Time period(s) investigated

2009-05 — 2012-01

Unit of analysis

Population

Scanians older than 18 years who sought treatment between 2003 and 2007 and received a spondyloarthritis-related diagnostics at least once by a specialist in rheumatology or internal medicine alternatively at least twice by a physician with other skills.

Time Method

Sampling procedure

Non-probability: Purposive

Ethics Review

Lund — Ref. 2008/406

Subject area

HEALTH (CESSDA Topic Classification)
Medical and Health Sciences, Clinical Medicine, Rheumatology and Autoimmunity (The Swedish standard of fields of research 2011)

Keywords

quality of life, smoking, physical activities, pain, sick leave, education, mental health, medical history, demography, diagnosis, epidemiologic studies, cohort studies, life style, longitudinal studies, anxiety, depression, fatigue, patients, working conditions, leisure time activities, productivity, rheumatic diseases, spondylarthritis, arthritis, psoriatic, epihealth, body function, self-efficacy, scania, ankylosing spondylitis, disease activity, work ability, undifferentiated spondylarthritis, epihealth_skåne, inflammatory arthritis associated with inflammatory bowel disease

Is part of collection at SND

Scania Metadatabase for Epidemiology (SME)

Associated documentation

Frågeformulär SpAScania 2009.pdf

Frågeformulär SpAScania 2011.pdf

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Publications

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Haglund E. Prevalence, physical activity, and work in patients with spondyloarthritis, Doctoral dissertation, Faculty of Medicine, Lund University, No 2013:107
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Haglund E, Bremander AB, Petersson IF, Strömbeck B, Bergman S, Jacobsson LT, Turkiewicz A, Geborek P, Englund M. Prevalence of spondyloarthritis and its subtypes in southern Sweden. Ann Rheum Dis. 2011 Jun;70(6):943-8
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Haglund E, Bremander A, Bergman S, Jacobsson LT, Petersson IF. Work productivity in a population-based cohort of patients with spondyloarthritis. Rheumatology (Oxford). 2013 Sep;52(9):1708-14.
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If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

Dataset 1

SpAScania 2009

Creator/Principal investigator(s)

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Data format / data structure

Numeric

Data collection

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2009-05 — 2009-08

Source of the data: Population group

Time period(s) investigated

2009-05 — 2009-08

Number of individuals/objects

2785

Response rate/participation rate

48

Dataset 2

SpAScania 2011

Creator/Principal investigator(s)

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Data format / data structure

Numeric

Data collection

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2011-11 — 2012-01

Source of the data: Population group

Time period(s) investigated

2011-11 — 2012-01

Number of individuals/objects

2037

Response rate/participation rate

58

Published: 2014-02-27
Last updated: 2018-11-15