SpAScania

This study is part of the collection Scania Metadatabase for Epidemiology (SME)

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Description:

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Purpose:

The aim is to create a longitudinal cohort of patients with spondyloarthritis and study the consequences of the disease on individuals and society.

Responsible department/unit:

Information not available, contact SND for more information

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Identifiers:

SND-ID: EXT 0091

Description:

Patients, diagnosed with spondyloarthritis, were identified through the healthcare system in Region Scania between 2003-2007. The cohort responded to two questionnaires, 2009 and 2011. The first questionnaire was answered by 2785 respondents (48 %) and the second was answered by 2037 respondents (58 %). The questionnaires consisted of validated instruments as well as separate issues (for example patient characteristics, demographics, lifestyle, physical activity, fatigue and pain, health-related quality of life, depression and anxiety, self-efficacy, work and issues related to health economics).

Purpose:

The aim is to create a longitudinal cohort of patients with spondyloarthritis and study the consequences of the disease on individuals and society.

Time period(s) investigated:

2009-05 — 2012-01

Unit of analysis:

Population:

Scanians older than 18 years who sought treatment between 2003 and 2007 and received a spondyloarthritis-related diagnostics at least once by a specialist in rheumatology or internal medicine alternatively at least twice by a physician with other skills.

Sampling procedure:

Non-probability: Purposive

Ethics Review:

Lund — Ref. 2008/406

Is part of collection at SND:

Scania Metadatabase for Epidemiology (SME)

Download metadata:

Publications

Sort by name | Sort by year

Haglund E. Prevalence, physical activity, and work in patients with spondyloarthritis, Doctoral dissertation, Faculty of Medicine, Lund University, No 2013:107
Read full text

Haglund E, Bremander AB, Petersson IF, Strömbeck B, Bergman S, Jacobsson LT, Turkiewicz A, Geborek P, Englund M. Prevalence of spondyloarthritis and its subtypes in southern Sweden. Ann Rheum Dis. 2011 Jun;70(6):943-8
Read full text

Haglund E, Bremander A, Bergman S, Jacobsson LT, Petersson IF. Work productivity in a population-based cohort of patients with spondyloarthritis. Rheumatology (Oxford). 2013 Sep;52(9):1708-14.
Read full text

If you have published anything based on these data, please notify us with a reference to your publication(s).


If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

Dataset 1

SpAScania 2009

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Data format / data structure:

Numeric

Data collection:

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2009-05 — 2009-08

Source of the data: Population group

Time period(s) investigated:

2009-05 — 2009-08

Number of individuals/objects:

2785

Response rate/participation rate:

48%

Dataset 2

SpAScania 2011

Creator/Principal investigator(s):

Stefan Bergman - FoU Spenshult

Ann Bremander - FoU Spenshult

Sofia Löfvendahl - Region Skåne

Emma Haglund - FoU Spenshult

Lennart Jacobsson - University of Gothenburg, Avdelningen för reumatologi och inflammationsforskning

Ingemar Petersson - Region Skåne

Data format / data structure:

Numeric

Data collection:

Mode of collection: Self-administered questionnaire: paper

Time period(s) for data collection: 2011-11 — 2012-01

Source of the data: Population group

Time period(s) investigated:

2011-11 — 2012-01

Number of individuals/objects:

2037

Response rate/participation rate:

58%

Published: 2014-02-27
Last updated: 2018-11-15