Family studies of pediatric cancer
This study is part of the collection Scania Metadatabase for Epidemiology (SME)
Creator/Principal investigator(s):
Håkan Olsson - Lund University, Faculty of Medicine, The Division of Oncology and Pathology
Description:
In this unique Swedish study, which started in September 2008, all new and prevalent cancer cases in southern Sweden are included to create a family history data bank. All children ≤18 years of age with a malignant disease in the Southern Swedish Health Care Region (approximately 1.8 million inhabitants) are referred for care to the Department of Pediatrics at the Skåne University Hospital in Lund. Patients with a newly diagnosed malignancy and patients visiting the clinics for follow-up after completed treatment were invited to participate in the study. The eligibility criteria include (a) a diagnosis before 19 years of age with a malignancy following codes ICD 140 to 209 and (b) a diagnosis after 1970. Blood samples are collected and the patients and their parents are requested to complete a self-reported questionnaire, assessing name, date of birth, date of death, and history of cancer among first-, second- and third degree relatives. In addition a question about cancer in more distant relatives is included. Information regarding specific type of cancer and date of, or age at, diagnosis for
... Show more..Subject area:
HEALTH
(CESSDA Topic Classification)
Cancer and Oncology, Other Clinical Medicine, Medical Genetics, Pediatrics
(The Swedish standard of fields of research 2011)
Principal organisation:
Accessibility status:
Responsible department/unit:
Creator/Principal investigator(s):
Håkan Olsson - Lund University, Faculty of Medicine, The Division of Oncology and Pathology
Identifiers:
SND-ID: EXT 0123
Purpose:
Description:
In this unique Swedish study, which started in September 2008, all new and prevalent cancer cases in southern Sweden are included to create a family history data bank. All children ≤18 years of age with a malignant disease in the Southern Swedish Health Care Region (approximately 1.8 million inhabitants) are referred for care to the Department of Pediatrics at the Skåne University Hospital in Lund. Patients with a newly diagnosed malignancy and patients visiting the clinics for follow-up after completed treatment were invited to participate in the study. The eligibility criteria include (a) a diagnosis before 19 years of age with a malignancy following codes ICD 140 to 209 and (b) a diagnosis after 1970. Blood samples are collected and the patients and their parents are requested to complete a self-reported questionnaire, assessing name, date of birth, date of death, and history of cancer among first-, second- and third degree relatives. In addition a question about cancer in more distant relatives is included. Information regarding specific type of cancer and date of, or age at, diagnosis for
... Show more..Time period(s) investigated:
2008-09 — ongoing
Unit of analysis:
Population:
All new and prevalent cases of cancer among children in the Southern Swedish Health Care Region.
Time Method:
Sampling procedure:
Subject area:
HEALTH
(CESSDA Topic Classification)
Cancer and Oncology, Other Clinical Medicine, Medical Genetics, Pediatrics
(The Swedish standard of fields of research 2011)
Is part of collection at SND:
Download metadata:
Publications
Magnusson S, Wiebe T, Kristoffersson U, Jernström H, Olsson H. Increased incidence of childhood, prostate and breast cancers in relatives of childhood cancer patients. Fam Cancer. 2012 Mar;11(1):145-55. doi: 10.1007/s10689-011-9493-3.
If you have published anything based on these data, please notify us with a reference to your publication(s).
Family history data bank
Description:
Data format / data structure:
Numeric
Data collection:
Mode of collection: Self-administered questionnaire
Time period(s) for data collection: 2008-09
Source of the data: Population group, Biological samples
Mode of collection: Physical measurements and tests
Time period(s) for data collection: 2008-09
Source of the data: Population group, Biological samples
Response rate/participation rate:
ca 30- 40 %