Family studies of pediatric cancer

SND-ID: EXT 0123

This study is part of the collection Scania Metadatabase for Epidemiology (SME)

Creator/Principal investigator(s)

Håkan Olsson - Lund University, Faculty of Medicine, The Division of Oncology and Pathology

Description

In this unique Swedish study, which started in September 2008, all new and prevalent cancer cases in southern Sweden are included to create a family history data bank. All children ≤18 years of age with a malignant disease in the Southern Swedish Health Care Region (approximately 1.8 million inhabitants) are referred for care to the Department of Pediatrics at the Skåne University Hospital in Lund. Patients with a newly diagnosed malignancy and patients visiting the clinics for follow-up after completed treatment were invited to participate in the study. The eligibility criteria include (a) a diagnosis before 19 years of age with a malignancy following codes ICD 140 to 209 and (b) a diagnosis after 1970. Blood samples are collected and the patients and their parents are requested to complete a self-reported questionnaire, assessing name, date of birth, date of death, and history of cancer among first-, second- and third degree relatives. In addition a question about cancer in more distant relatives is included. Information regarding specific type of cancer and date of, or age at, diagnosis for

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Research principal, contributors, and funding

Research principal

Region Skåne

Responsible department/unit

Faculty of Medicine, The Division of Oncology and Pathology

Protection and ethical review
Method and time period

Unit of analysis

Population

All new and prevalent cases of cancer among children in the Southern Swedish Health Care Region.

Time Method

Sampling procedure

Non-probability

Time period(s) investigated

2008-09 – ongoing

Geographic coverage
Publications

Magnusson S, Wiebe T, Kristoffersson U, Jernström H, Olsson H. Increased incidence of childhood, prostate and breast cancers in relatives of childhood cancer patients. Fam Cancer. 2012 Mar;11(1):145-55. doi: 10.1007/s10689-011-9493-3.

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Dataset
Family history data bank

Description

Family history data bank, based on all new and prevalent cancer cases in the Southern Swedish Health Care Region. Until 2014 there were 650 children included in the study, and blood from 125 parents. The response rate is between 30-40%.

Data format / data structure

Numeric

Creator/Principal investigator(s)

Håkan Olsson - Lund University, Faculty of Medicine, The Division of Oncology and Pathology

Data collection 1

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2008-09–ongoing
  • Source of the data: Population group, Biological samples

Data collection 2

  • Mode of collection: Physical measurements and tests
  • Time period(s) for data collection: 2008-09–ongoing
  • Source of the data: Population group, Biological samples

Response rate/participation rate

ca 30- 40 %

Contact for questions about the data

Is part of collection at SND

Scania Metadatabase for Epidemiology (SME)

Published: 2014-09-18
Last updated: 2017-03-21