LifeGene

This study is part of the collection Swedish Cohort Consortium (Cohorts.se)

Creator/Principal investigator(s):

Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics

Description:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.

LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.

Subject area:

HEALTH (CESSDA Topic Classification)

Creator/Principal investigator(s):

Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics

Identifiers:

SND-ID: EXT 0172

Purpose:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes.

Description:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.

LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.

Geographic spread:

Geographic description: Sweden

Unit of analysis:

Population:

The total population of Sweden.

Sampling procedure:

Total universe/Complete enumeration

Subject area:

HEALTH (CESSDA Topic Classification)

Contact person for questions about the data:

Kicki Kjaergaard

Publications

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Almqvist C, Adami HO, Franks PW, Groop L, Ingelsson E, Kere J, Lissner L, Litton JE, Maeurer M, Michaëlsson K, Palmgren J, Pershagen G, Ploner A, Sullivan PF, Tybring G, Pedersen NL. LifeGene--a large prospective population-based study of global relevance. Eur J Epidemiol. 2011 Jan;26(1):67-77. doi: 10.1007/s10654-010-9521-x. Epub 2010 Nov 21.

If you have published anything based on these data, please notify us with a reference to your publication(s).

LifeGene

Data format / data structure:

Numeric

Data collection:

Mode of collection: Self-administered questionnaire

Time period(s) for data collection: 2009

Source of the data: Registers/Records/Accounts, Population group, Biological samples

Mode of collection: Computer-based observation

Time period(s) for data collection: 2009

Source of the data: Registers/Records/Accounts, Population group, Biological samples

Mode of collection: Measurements and tests

Time period(s) for data collection: 2009

Source of the data: Registers/Records/Accounts, Population group, Biological samples

Time period(s) for data collection: 2009

Source of the data: Registers/Records/Accounts, Population group, Biological samples

Time period(s) investigated:

2009 — ongoing