Creator/Principal investigator(s)
Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics
Description
LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.
LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.
Purpose:
LifeGene is a prospective cohort study with longitudinal follow-up, the goal
Research principal
Responsible department/unit
Department of Medical Epidemiology and Biostatistics
Unit of analysis
Population
The total population of Sweden.
Time Method
Sampling procedure
Geographic spread
Geographic description: Sweden
Research area
HEALTH
(CESSDA Topic Classification)
Medical and Health Sciences, Public Health, Global Health, Social Medicine and Epidemiology
(The Swedish standard of fields of research 2011)
Almqvist C, Adami HO, Franks PW, Groop L, Ingelsson E, Kere J, Lissner L, Litton JE, Maeurer M, Michaëlsson K, Palmgren J, Pershagen G, Ploner A, Sullivan PF, Tybring G, Pedersen NL. LifeGene--a large prospective population-based study of global relevance. Eur J Epidemiol. 2011 Jan;26(1):67-77. doi: 10.1007/s10654-010-9521-x. Epub 2010 Nov 21.
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Access to data via
Homepage
Contact
Kicki Kjaergaard
Data format / data structure
Numeric
Creator/Principal investigator(s)
Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics
Time period(s) investigated
2009 – ongoing