LifeGene

SND-ID: EXT 0172

This study is part of the collection Swedish Cohort Consortium (Cohorts.se)

Description Data and documentation

Creator/Principal investigator(s)

Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics

Description

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.

LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.

Purpose:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal

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Research principal, contributors, and funding
Protection and ethical review
Method and time period

Unit of analysis

Population

The total population of Sweden.

Sampling procedure

Total universe/Complete enumeration
Geographic coverage

Geographic spread

Geographic description: Sweden

Publications

Almqvist C, Adami HO, Franks PW, Groop L, Ingelsson E, Kere J, Lissner L, Litton JE, Maeurer M, Michaëlsson K, Palmgren J, Pershagen G, Ploner A, Sullivan PF, Tybring G, Pedersen NL. LifeGene--a large prospective population-based study of global relevance. Eur J Epidemiol. 2011 Jan;26(1):67-77. doi: 10.1007/s10654-010-9521-x. Epub 2010 Nov 21.

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Access to data via

Dataset
LifeGene

Data format / data structure

Numeric

Creator/Principal investigator(s)

Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics

Time period(s) investigated

2009–ongoing

Data collection 1

  • Mode of collection: Computer-based observation
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 2

  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 3

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples
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Contact for questions about the data

Related research data in SND's catalogue

Published: 2015-04-29
Last updated: 2020-01-17