Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Description

The Swedish Mammography Cohort (SMC) is a large population-based cohort of over 60,000 women in the counties of Uppsala and Västmanland. All women born 1914-1948 who were residing in Västmanland and Uppsala County and in the years 1987-1990 received an invitation to participate in a mammography screening programme were asked to answer a questionnaire about diet and lifestyle. Approximately 66,000 women answered the questionnaire. In the autumn 1997, a second survey was sent to these women to update the information about their eating habits. Additional follow-ups were done 2008/2009 and 2019. The study examine associations of environmental/modifiable risk factors with several cancer sites (e.g., breast, colorectal, endometrium, ovary, and renal cell cancer), myocardial infarction, stroke, osteoporosis, cataracts, as well as death causes. The study has a longitudinal design, and to complement the update on exposure data record linkages to the nationwide Cancer Register, the In-Patient Register, and the Cause of Death Register and Population Register are also done.

The questionnaires used in the

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Language

English

Research principal, contributors, and funding

Research principal

Uppsala University

Funding

Protection and ethical review

Data contains personal data

Yes

Sensitive personal data

Yes

Type of personal data

health data

Code key exists

Yes

Ethics Review

Uppsala - Ref. 2018/262 och 2018/263

Method and time period

Population

Women born 1914-1948 living in Västmanland or Uppsala County during 1987-1990.

Study design

Observational study

Cohort study

Description of study design

Longitudinal cohort study

Sampling procedure

Total universe/Complete enumeration
From 1987 to 1990, all women who lived in the Uppsala County of central Sweden and were born between 1914-1948 and all women who lived in the adjacent Västmanland County and were born between 1917-1948 received an invitation by mail to participate in a mammography screening program. Included in the mail was also an invitation to participate in this research study and a questionnaire to be answered and returned. Follow-ups have been performed approximately every tenth year starting in 1997. At next follow-up, 2008/2009, the questionnaire was extended and separated into two questionnaires. An additional follow-up was done during 2019.

Time period(s) investigated

1987 – ongoing

Biobank is connected to the study

The study has collected samples/material which are stored in a scientific collection or biobank

Scientific collection or biobank name: Uppsala biobank/SIMPLER

Type(s) of sample: DNA

Geographic coverage

Geographic spread

Geographic location: Sweden

Geographic description: Uppsala and Västmanland counties, Sweden.

Lowest geographic unit

Municipality

Highest geographic unit

Country

Topic and keywords
Publications

Harris H, Håkansson N, Olofsson C, Julin B, Åkesson A, Wolk A. The Swedish Mammography Cohort and the Cohort of Swedish Men: Study design and characteristics of 2 population-based longitudinal cohorts. OA Epidemiology;1(2):16, 2013.
DOI: https://doi.org/10.13172/2053-079X-1-2-943

Link to publication list:

If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

Dataset 1
The Swedish Mammography Cohort, SMC 1987

Description

Women born between 1914 and 1948, and living in Västmanland county between 1987 and 1989 or living in Uppsala County between 1988 and 1990, received an invitation by mail to participate in a mammography screening program, in total 90,303 women. The invitation included a six-page questionnaire that sought information on diet and alcohol intake (67-item food frequency questionnaire), parity, age at first childbirth, family history of breast cancer, weight, height, education level, and marital stat

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Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Description of the mode of collection: Specific date for collection.
  • Time period(s) for data collection: 1987–1990
  • Source of the data: Population group

Response rate/participation rate

74%

90 303 women received the invitation, 66 651 answered the questionnaire and 61 433 participants remained after exclusions (wrong or missing personal number, cancer diagnosis etc.).

Dataset 2
The Swedish Mammography Cohort, SMC 1997

Description

In 1997 a second questionnaire was sent to all cohort members of the Swedish Mammography Cohort who were still living in the study area. The aim was to update the information about diet. The questionnaire from 1987 was extended to include information on physical activity, medical history, age at menarche, history of oral contraceptive use, age at menopause, postmenopausal hormone use and lifestyle factors such as cigarette smoking history and use of dietary supplements. The questionnaire can be

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Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 1997–1997-09-15
  • Source of the data: Population group

Response rate/participation rate

70%

56 030 participants received a questionnaire, 38 984 participants remained after exclusions (wrong or non-given personal number).

Dataset 3
The swedish mammography cohort, SMC 2008 health

Description

All members of the Swedish Mammography Cohort who had completed the 1987 food frequency questionnaire received a third questionnaire in 2008. The 2008 Health questionnaire collected information on general health status, disease diagnoses, current body weight, height, waist and hip circumferences, dental health, medication use, sleep habits, urine and bowel habits, family history of selected diseases, stress, and social support. The questionnaire can be found at https://www.simpler4health.se/rese

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Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2008–2008-12-31
  • Source of the data: Population group

Response rate/participation rate

63%

48 253 participants received a questionnaire at the follow-up, 30 621 answered the questionnaire.

Dataset 4
The Swedish mammography cohort, SMC 2009 lifestyle

Description

All cohort members who received the 2008 Health questionnaire was sent a fourth questionnaire in 2009. The questionnaire collected information on diet (132-item food frequency questionnaire), dietary supplements, smoking, physical activity, and sun habits. The questionnaire can be found at https://www.simpler4health.se/researchers/questionnaires/.

Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2009–2009-06-30
  • Source of the data: Population group

Response rate/participation rate

84%

The questionnaire was sent to 30 134 paticipants, 25 332 participants answered the questionnaire.

Dataset 5
The Swedish Mammography Cohort, SMC 2019 health

Description

Using the same version of the questionnaire as in 2008 the Health questionnaire was sent in January 2019 to all living participants in the cohort. The questionnaire can be found at https://www.simpler4health.se/researchers/questionnaires/.

Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2019-01-21–2019-06-30

Response rate/participation rate

55%

The questionnaire was sent to 34 473 participants, 19 081 participants answered the questionnaire.

Dataset 6
The Swedish Mammography Cohort, SMC 2019 lifestyle

Description

The Lifestyle questionnaire used in 2009 was sent in September 2019 to all respondents answering the Health questionnaire 2019 sent in January and were alive. The questionnaire can be found at https://www.simpler4health.se/researchers/questionnaires/.

Citation

https://www.simpler4health.se/researchers/publication-policy/

Data format / data structure

Numeric

Creator/Principal investigator(s)

Karl Michaëlsson - Uppsala University, Department of Surgical Sciences orcid

Data collection

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2019-09-16–2019-12-31

Response rate/participation rate

83%

The questionnaire was sent to 18 930 women, 14 922 participants answered the questionnaire.

Contact for questions about the data

Is part of collection at SND

SIMPLER - Swedish Infrastructure for Medical Population-Based Life-Course and Environmental Research

Swedish Cohort Consortium (Cohorts.se)

NEAR - National E-Infrastructure for Aging Research in Sweden

Published: 2011-01-01
Last updated: 2022-03-28